In this Blog i am going to write how we have and are being treated. Please people just because people are in wheel chairs doesn't not mean that we are contiguous. You won't catch it. In the past 3 years we have had such a hard time. Trying to get a little help or support is so hard to deal with. My wife has been and still my 300% caregiver. I am not able to do things I used to do. I can not do outdoor chores even the simple ones.
When I received Home Services they put us on such a tight lock down that it was so hard to breathe some days. These people are suppose to make life easier and they made our life very difficult.
The treated my wife and I with so much disrespect it was hard to watch. I was always taught to treat people with respect. And with me in the chair and being so weak. It made me very depressed. There were times I thought it would be better if I was not here and then they would get off my wife's back. She had to do everything.
On many occasions they wanted to put me in a home.
My wife told them on many occasions that this was our home and we are staying together. What they don't seem to understand. We have a rare and unique love we want and need to be together. Take us apart and we will lose the will to live.
I no longer have Home Services they have discharged me saying that they don't have what I need.
I want to express when someone gets sick or an rare illness we are still the same person. Treat us with respect, treat us like how you want to be treated. Don't treat us like a number. We are human. Treating us with disregard and that we don't matter just as long as you get what you think is your job and you get a pay. It doesn't work like that. You took an oath to help people, regardless what there health issue is.
Another issue i would love to state is Contractors. Their job is to do the work get paid. But they forgot one big issue. Listen to the person that is paying you for the job to be done. They have a big problem listen to women like they don't know anything. And then to disrespect a person in a chair is just not right. We had some work done in our home to make things more accessibly for me. which at this time is still not accessibly for me even though the work has been done. I have asked many parties to help while this was taken place and was pushed aside and said you know nothing.. With the work done in our home and has not been done correctly or safely there are areas in our home that i can't get too. And is very frustrating.
I also want to state that before I became disable. I help all that needed it. Even though I was tired and had allot of our own work to do I still found time to help friends and neighbours. Once I became disable they have treated us like we have a major plague.
Just to get a simple job done is like pulling teeth.
I though neighbours help neighbours. When did it become one sided.
When I attending my specialist appointments we stayed in Hotels, Where does it say that people that are disable are millionaires. Where does it state that they can be treated like garbage, and decide themselves to charge more then stated. And in there defense they say you have the money .
When did our society change that people treat people different. Is it that you are afraid of change. Or just don't want to learn.
I hope my Blog will open some eyes and help people learn to treat people whatever there disability is with the same dignity of someone that is not disable .
I also wanted to thank my wife for all she has done and still does every day and that she has her own disability to deal with everyday and never complains and takes care of me the best way she can.
So remember that your life can change in a blink of an eye. How would you survive.
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